Student Megan has a one in a million condition that causes her recurring periods of excessive sleep. A law student with a one in a million condition known as Sleeping Beauty syndrome has revealed how she has slept through HALF the Christmases since her diagnosis – often staying in a deep slumber for 20 hours without waking.
Just 13 when she was diagnosed with Kleine-Levin syndrome (KLS) – a complex neurological disorder, involving recurring periods of excessive sleep, altered behaviour and a reduced understanding of the world- while her family celebrate the festivities, Megan Firth, 18, is likely to be found in bed.
At her worst Megan, who lives with her younger brother, Jamie, 13, accountant mum Emma, 50, and logistics director dad, Andrew, 54, in Wallingford, Oxfordshire, has spent months more or less bed-bound – rising only to eat and use the bathroom.
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To view this media, you need an HTML5 capable device or download the Adobe Flash player. Megan often sleeps through Christmas but likes to sleep downstairs on the sofa so she can be near her family (Collect/PA Real Life) The Nottingham University student, who says her excessive sleeping – known as hypersomnolence – is worse in the winter months, said: “This means I’m often asleep right through Christmas.
“We are always at home and my grandmas tend to come and stay with us. But even if I am in the middle of a sleep episode, I like to at least be around them all and sleep downstairs on the sofa
“They are all pretty used to it by now and know not to bother me, as I can become very panicked when I’m woken up in the middle of a long sleep.” Megan with her university friends at her halls in Nottingham University (Collect/PA Real Life) While her condition is dubbed Sleeping Beauty syndrome, at university she feels more like the fairy tale character Cinderella as, like her, she has to leave student gatherings before midnight, to avoid triggering her KLS.
She explained: “It’s quite difficult […]